From our General manager


My Story


Many times your life experiences help to prepare you…...for what your purpose is. That is what happened to me.

I always wanted to be a vet, instead I became a nurse, with a love of animals. I have done many and varied things in my life which when I look back, l realise have all led me to where I am today. I feel fulfilled helping people. 

My introduction to Huntington's (HD)

2004 redefined my life. I chose to revisit nursing and had the honour of nursing a gentleman with a disease I did not know existed. He was very tall, he could not stop moving, most of the staff avoided contact with him out of fear as he seemed scary. I saw a person, not a disease. I built up a rapport with him and I came to appreciate the gentle giant behind the constant movement of arms and legs. His name was Bernie and he had Huntington’s disease (HD).  Bernie passed away that same year while I sat with him. I had no idea how this meeting was going to change my life.

A change in direction

I decided I wanted to work principally with those with Huntington’s disease, and very quickly learnt about an incredible community who have become my second family. The challenges they face on a daily basis cannot be put into words, they are truly amazing people.

In 2014 I was approached by a relative whose son had HD. Rena asked “if I would fight for the HD community & stop them from falling even further in the cracks.”  I didn’t know how to do this, I just knew I had to do something about it.

I thank Bernie and Rena everyday for making me aware of this insidious disease, this wonderful community, their friendship, support & inspiration. I was given a precious gift…….the gift of making a difference

Making a difference

Raising awareness and support for those with Huntington's disease, and those affected by the disease is now my life’s mission and I am seeking to find others too who want to make a difference!

Michele Giles-Clark

you can contact me at: